“Spinal muscular atrophy is a rare neurodegenerative disease that causes progressive muscle weakness. This disease affects key motor functions like crawling, walking, eating and breathing, and affects one in 6,000 to 10,000 infants.

“August is designated as Spinal Muscular Atrophy Awareness Month. During this month, we acknowledge spinal muscular atrophy and its toll upon those living with this disease and their families.

“Alberta’s government recognizes this difficult journey and the challenges faced by those living with this disease. To better support these families, Alberta’s government has taken steps to increase access to care. Since Dec. 1, 2018, the government has funded the prescription drug Spinraza for children with spinal muscular atrophy.

“Please join Alberta’s government in offering your support and, most importantly, your compassion to those living with spinal muscular atrophy and their families.”